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23 Signs You Grew Up With Ehlers Danlos Syndrome

23 Signs You Grew Up With Ehlers Danlos Syndrome

2 min read 16-12-2024
23 Signs You Grew Up With Ehlers Danlos Syndrome

Growing up with Ehlers-Danlos Syndrome (EDS) can be a unique experience, marked by challenges and triumphs often unseen by those without the condition. Many individuals with EDS learn to navigate their symptoms and develop coping mechanisms, often without formal diagnosis until adulthood. This article outlines 23 common signs that may indicate you grew up with undiagnosed or under-diagnosed EDS. This information is for general knowledge and should not substitute for professional medical advice. Always consult with a healthcare professional for any concerns about your health.

Childhood Indicators:

  1. Hypermobility: Excessive joint flexibility, often described as being "double-jointed," was likely a prominent feature of your childhood. You could easily touch your thumbs to your forearms or hyperextend your knees and elbows.

  2. Frequent Dislocations: Shoulders, knees, fingers, and hips were prone to popping out of place, often with little or no significant trauma. These incidents likely became commonplace.

  3. Chronic Pain: Persistent aches and pains in joints, muscles, and other areas of the body were a constant companion. This wasn't just "growing pains."

  4. Easy Bruising: Your skin was prone to bruising, even from minor bumps or pressure. The bruises were often larger and lasted longer than usual.

  5. Slow Wound Healing: Cuts, scrapes, and other wounds took significantly longer to heal, sometimes leaving noticeable scars.

  6. Recurring Headaches: Migraines or chronic tension headaches were frequent occurrences.

  7. Digestive Issues: Stomach pain, nausea, vomiting, constipation, or diarrhea were common complaints.

  8. Fatigue: Persistent, overwhelming tiredness was a constant battle, impacting daily activities and energy levels.

Adolescent and Adult Reflections:

  1. Recurrent Sprains and Strains: Muscles and ligaments were easily injured, leading to repetitive sprains and strains.

  2. POTS (Postural Orthostatic Tachycardia Syndrome): Experiencing dizziness, lightheadedness, or fainting upon standing may have been a recurring issue.

  3. Breathing Difficulties: Shortness of breath, chest pain, or a feeling of tightness in the chest could have been present.

  4. Anxiety and Depression: The chronic pain, fatigue, and challenges associated with EDS often led to increased anxiety and depression.

  5. Sleep Disturbances: Sleep apnea, insomnia, or restless leg syndrome were common sleep disturbances.

  6. Skin Issues: Stretch marks, fragile skin prone to tearing, and velvety skin texture may have been noticeable.

  7. Vision Problems: Blurry vision, double vision, or other eye-related issues may have been experienced.

  8. Hearing Issues: Tinnitus or hyperacusis (increased sensitivity to sound) were possible.

Later Life Considerations:

  1. Joint Instability: Progressive joint instability made daily activities increasingly challenging.

  2. Osteoarthritis: Early-onset osteoarthritis was a frequent complication.

  3. Scoliosis or Spinal Curvature: An abnormal curvature of the spine could develop over time.

  4. Cardiovascular Issues: Heart valve prolapse or other cardiovascular issues were potential concerns.

  5. Gastrointestinal Problems: Gastroparesis (delayed stomach emptying) and other serious digestive issues could develop.

  6. Chronic Pain Progression: The severity and impact of chronic pain intensified over time.

  7. Impact on Daily Life: The cumulative effect of these symptoms resulted in significant disruptions to work, relationships, and overall quality of life.

Disclaimer: This list is not exhaustive, and the presence of these signs does not confirm a diagnosis of EDS. A proper diagnosis requires a thorough evaluation by a qualified healthcare professional specializing in connective tissue disorders. If you are concerned about your health, seek professional medical advice.

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